“Life is always beautiful,exciting and valuable”, answered Ursula Broermann, a woman with late-stage ALS and who was almost completely paralyzed, to a question from a journalist why she had chosen for artificial respiration. The journalist assumed that people who are locked-in would want to die, but Ursula seemed happy to be alive.
The classical locked-in state is characterized by total immobility except for vertical eye movements or blinking. Incomplete (or residual) LIS permits remnants of voluntary motion and total (or complete) LIS consists of complete immobility including all eye movements combined with preserved consciousness.
The Locked-in Lab, led by Dr. Femke Nijboer, looks at the locked-in syndrome and related disorders (SMA, ALS, SCI) from different angles.
- Quality of life and coping with LIS, ALS or related disorders
- Medical decisions and end-of-life decisions in LIS and ALS
- Assistive technologies
- Social participation
- Brain-Computer Interfacing
We often find out that being lock-in, may also mean you are locked-out. So, we try to come up with innovative technologies to unlock people and strategies to include people in society.